Sunday, October 26, 2008
Slacking on Updates
With all the craziness in my life I haven't posted as much as I should about my little angel!
She had that cold for a little bit and has completely recovered from that now! We are dealing with constipation, which as most of you know is really common with our Rett Angels but Seaira hasn't struggled much with it over the years, hopefully it's just short term! She recently had a check up with the surgeon to see how her incision was doing from her VNS replacement and it seems to be fine, I still think it looks horrible but it is what it is!
We went to the Pumpkin Patch Friday morning with Jayen's preschool class! Seaira didn't enjoy it as much as I hoped she would but it could have been so much worse! It was really cold and that did not help matters! Daddy picked out the biggest pumpkin he could find her and that made her smile!
She will see her neuro on the 30th but I really don't forsee any changes, any time we change meds we get more seizures but she is totally losing her mobility by beeing on all these meds, it breaks my heart, my once some-what independent girl is pretty much bed ridden now! No more hopping around to get to where she wants to go! :o(
I will post some pumpkin patch pics in a new blog, and I wanted to give a special thanks to Stacy, it was you that made it possible for us to go!! :o)
She had that cold for a little bit and has completely recovered from that now! We are dealing with constipation, which as most of you know is really common with our Rett Angels but Seaira hasn't struggled much with it over the years, hopefully it's just short term! She recently had a check up with the surgeon to see how her incision was doing from her VNS replacement and it seems to be fine, I still think it looks horrible but it is what it is!
We went to the Pumpkin Patch Friday morning with Jayen's preschool class! Seaira didn't enjoy it as much as I hoped she would but it could have been so much worse! It was really cold and that did not help matters! Daddy picked out the biggest pumpkin he could find her and that made her smile!
She will see her neuro on the 30th but I really don't forsee any changes, any time we change meds we get more seizures but she is totally losing her mobility by beeing on all these meds, it breaks my heart, my once some-what independent girl is pretty much bed ridden now! No more hopping around to get to where she wants to go! :o(
I will post some pumpkin patch pics in a new blog, and I wanted to give a special thanks to Stacy, it was you that made it possible for us to go!! :o)
Friday, October 24, 2008
Thursday, October 23, 2008
Prayer Request
There is a little girl in Seaira's class named Tatum, she has been in the hospital for a while now and is not doing well at all and the out come does not look good! I don't know what her "condition" is just that she is severely handi-cap and has had a lot of health issues!
Please keep her and her family in your prayers right now!
Thanks
Sunday, October 19, 2008
Awwww, so sweet!
My friend Leanne posted this on my Myspace and since the ladies mentioned are not on Myspace I thought I'd post it on here so they could see!!
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What a blessing. It's wonderful to hear of people caring for people.
Thank you Katie, Sherri, Stacy, Nancy, Cynthia, Robin and Mona for helping a friend of ours who is a great mom, wife and friend.
I would give more kudos but darn myspace will only let me give ya 2....
Posted by Leanne on Oct 19, 2008 6:56 PM
****************Saturday, October 18, 2008
My Cup Runnith Over~
You know the old saying "what comes around goes around"? Well today I got to see that first hand! I have always been one to help out friends, family and even people who I didn't directly know if I heard there was a need, I've just always been that way! Well as most of you know my family has been struggling and things were getting really bad, I was not sure at all how I was going to come out of it and still have a place to live etc... Well Seaira's class heard about our situation and helped out in such a special way! We now have food to last for a month and I'll gas to put in the van!
I don't want to go into all the details but lets just say they are a wonderful group of ladies and I couldn't be more grateful for everything they have done for us, it will not be forgotten!
Thank you Katie, Sherri, Stacy, Nancy, Cynthia, Robin and Mona (I really hope I didn't forget anyone)
I finally feel like there is hope to come out of this mess and that feels good!!!!!!!!
MyHotComments
I don't want to go into all the details but lets just say they are a wonderful group of ladies and I couldn't be more grateful for everything they have done for us, it will not be forgotten!
Thank you Katie, Sherri, Stacy, Nancy, Cynthia, Robin and Mona (I really hope I didn't forget anyone)
I finally feel like there is hope to come out of this mess and that feels good!!!!!!!!
MyHotComments
Friday, October 17, 2008
I can breath for a moment!
With the help of a wonderful person I got payment arrangements worked out with the PUD, ones I think I can live with! There is one battle done, on to the next one!!!
PS
Katie, your awesome, thanks for ALL the help!
PS
Katie, your awesome, thanks for ALL the help!
:o)
Fever is gone cough is still bad! She woke me up at 3:00am coughing, I got up and got her some more cold medicine and I don't think it calmed down until 7:00am, I'm beat!
Thursday, October 16, 2008
Wednesday, October 15, 2008
Special Thanks!
I just wanted to say thank you to Anna for bringing by all the Halloween decorations for the kids!
I looked through the boxes and there is some awesome stuff in there, they are going to be soooo excited and I'm gonna save that gas card so that I can take then to the Pumkin Patch with Jayden's class! Your awesome!!
MyHotComments
I looked through the boxes and there is some awesome stuff in there, they are going to be soooo excited and I'm gonna save that gas card so that I can take then to the Pumkin Patch with Jayden's class! Your awesome!!
MyHotComments
Seizure Danger!
I just wanted to let everyone know Seaira's cold has got worse and she now has a low grade fever which tends to bring on seizures! So far so good, but it's hard to say what the day will bring!
AS for my other situation the van payment won by default this morning (it was taken out right as Jeff's check was deposited) and I called the PUD this morning and I have until tomorrow to pay it!
Any body win the lottery recently? Just Kidding! Anyway that is where we are at right now!
AS for my other situation the van payment won by default this morning (it was taken out right as Jeff's check was deposited) and I called the PUD this morning and I have until tomorrow to pay it!
Any body win the lottery recently? Just Kidding! Anyway that is where we are at right now!
Tuesday, October 14, 2008
Life is Crazy!
Right now Seaira has a cold, nothing to big, just a cough. Seizures are under control for now, hopefully the cold won't egg them on! She see's her neuro on the 30th and at this point it seems like we're going to have to keep her on all 4 meds! :o( We'll see if he wants to change anything but I doubt it!
If any of you are on my Myspace and read my blogs you probably are aware that my family is going through a really rough spot right now! I made a serious error two months ago that made an extra $1,000 go out on a bill and the company refused to refund it due to late fees I had and now I can't recover! My checking account is overdrawn by $800.00 all in NSF fees except for a $200.00 payemnt that they let slip through, the rest is all fees! The electric company should find out today that my $400.00 (two month payment) payment bounced, my van payment is now 35 days past due and they are calling non-stop plus rent is now past due! Jeff gets paid tomorrow and I will be able to pay one bill and have nothing left over! I am so stressed right now! If you could please keep us in your thoughts and prayers during this rough time I would really appericate it! If I disappear off of here for a while that will be because of my electric being shut off!
If any of you are on my Myspace and read my blogs you probably are aware that my family is going through a really rough spot right now! I made a serious error two months ago that made an extra $1,000 go out on a bill and the company refused to refund it due to late fees I had and now I can't recover! My checking account is overdrawn by $800.00 all in NSF fees except for a $200.00 payemnt that they let slip through, the rest is all fees! The electric company should find out today that my $400.00 (two month payment) payment bounced, my van payment is now 35 days past due and they are calling non-stop plus rent is now past due! Jeff gets paid tomorrow and I will be able to pay one bill and have nothing left over! I am so stressed right now! If you could please keep us in your thoughts and prayers during this rough time I would really appericate it! If I disappear off of here for a while that will be because of my electric being shut off!
Friday, October 3, 2008
Someday, somehow, someway...Please!
Grrrrrrrrrrrrrrrr Grrrrrrrrrrrrrrrrr and Grrrrrrrrrrrrrrrrrr
Tonight I decided to put Seaira back in her own bed, she has been sleeping in mine since July when all the seizures started! Well that was a big mistake, guess what started back up about 10 minutes after I did that????? You got it seizures are back! I guess we won't be decreasing the one med after all. It sucks, she can't even sit up on her own anymore. :o(
I was suppose to be able to take her to school tomorrow and leave her for a bit because one of her old staff assistants was going to be working with her and now she won't be able to go! :o(
I would just like to feel like there is going to be some sort of relief for her!!!!
Please continue to keep her in your thoughts and prayers!
Thanks!
Tonight I decided to put Seaira back in her own bed, she has been sleeping in mine since July when all the seizures started! Well that was a big mistake, guess what started back up about 10 minutes after I did that????? You got it seizures are back! I guess we won't be decreasing the one med after all. It sucks, she can't even sit up on her own anymore. :o(
I was suppose to be able to take her to school tomorrow and leave her for a bit because one of her old staff assistants was going to be working with her and now she won't be able to go! :o(
I would just like to feel like there is going to be some sort of relief for her!!!!
Please continue to keep her in your thoughts and prayers!
Thanks!
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